Tag: reality

Broken

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In Japan, there’s a term called “Kintsukoroi”; it refers to broken objects which are repaired with gold. This way, the flaw is seen as a unique attribute to its history and adds to its beauty.

Shortly after my first surgery, when my small intestine was removed and I was told I would never eat or drink again, I was in ICU and my mom was there visiting. I was obviously processing this grim news and spent most of my waking hours in tears. I was broken in every sense of the word. My mom took me in her arms, as much as she could being that I was attached to multiple IVs and oxygen, and with her head next to mine she whispered to me that she would take me broken over not having me at all.

Although these words comfort me on a daily basis, it still hurts my heart. I’m broken. I have pieces missing. And no matter how far I may come with medications or surgeries, I will forever have the scars that remind me that I am and forever will be broken.

But really, who isn’t broken in one way or another?

I love the idea, however, that maybe this brokenness can make me more beautiful. That gold can be added to these cracks and scars. Who doesn’t like to add a little bling to their life?

Ok, physically I’m not a fan of the scars that have been left on my body. But I have noticed how my being broken has changed me in other ways. I don’t get offended easily – it’s not worth the energy that it uses up. I make sure to spend some quality time with friends and family and I get family photos any chance I can. I’m more patient now. I’ve learned sympathy is a great asset to have. I’m slowly outlining my scars with gold. Making my brokenness beautiful with things I may not have had in my life if my life didn’t take this turn.

I woke up from a dream last week full on sobbing and I whispered “Jesus, I’m too broken. I need you to carry me.” I don’t remember what the dream was, but I’ve been hanging on to those words all week. “I’m too broken. Carry me.”

I’ll never get through this on my own strength. I’ve had to rely on family, friends and my church. Now I really need to let Jesus carry me for the time being and let more gold fill in the broken parts of me.

kintsukuroi

 

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Discovering My New Self Since My Diagnosis

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Through every stage of life we’re trying to figure out who we are. What is our role in society, how do we fit in, who are we really? What side of us do we keep to ourselves, show to those closest to us, what do we show to the rest of the world? We are constantly evolving. Jobs change us. People change us. Age changes us. But most of these changes happen gradually enough that we adapt without any thought. What happens though when something comes along and changes everything rapidly? Everything about you needs to accommodate for your new reality.

Since becoming sick, I’ve had to stop working, my social life has changed dramatically, and my relationship with my husband has changed. I no longer work out, my energy level has changed dramatically. My months are filled with appointments instead of coffee dates. I sport an IV line on my chest which everyone stares at, have a handicap parking pass, and have a walker for my really rough days. I’ve made new friends, lost old friends, and grown closer to friends that really stuck by me through all these changes. The list goes on and on, but name something and I can pretty well guarantee that it’s changed in one form or another.

I’ve been saying it for the last year and a half, and I’m sure I will be saying it for a while yet, but I miss the old me. I miss my old life. I was full of life, joyful, positive, loud and opinionated. I loved going out and I hated staying in. If I had an afternoon free, I would either be out being social or working on one of my various projects.

I’m quiet now and much more reserved. It takes a lot of energy to be full of life. I’m not surrounded by people all the time anymore, partly because of not working at the moment and also because going out takes a lot out of me. I find it really difficult to follow conversations now, especially in the evenings when I’m really tired.

How do I go back to being who I used to be? Is it even possible? With my diagnosis and disability has come wisdom and an empathy that has helped me reach out to people. But would I give it up to be the old me again?

I’m sitting here trying to put into words who the new me is and I’m having a hell of a hard time doing that. I think I need an “Under Construction” sign to put on me for the time being. I don’t know who I am right now. I’m still trying to figure out how all of this plays into my new life.

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Yes, I am a mom, a Christian, a wife. But I’m talking about more than labels right now. I’m talking about what knits me together. What words others would use when describing me.

Ideally I’d like to eventually piece who I am back together. Some of my old self and some of my new self. The joy and thirst for adventure I had with the wisdom and vulnerability this new life has taught me. I’m still trying to figure it out, it may take time, but I want people to see the joy and the shine that used to show in my eyes.

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What I Post On Facebook vs My Reality

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We all know that what we see on Facebook isn’t always what exactly happens in real life. Everybody posts the good stuff. They want to show off, show the progress that’s happening in their lives, and boast the highlights of what’s happening in their life. Well, here’s the inside scoop of what my reality actually looks like vs what I like to show on Facebook.

When I’m Put Together vs My Everyday “Sick” Look

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Anytime I go out in public or have people come over, I make sure I look good and 9 times out of 10, I post a selfie from that day because I feel good. I feel like garbage 99% of the time, no point in giving people a visual of what I’m actually feeling on my down days. I’ve heard “but you don’t look sick” so many times. Trust me, if you could sneak a peek at me while I’m at home alone, you wouldn’t be saying that! And there’s a reason for that – I use a lot of my energy to look good because it helps me feel good. So why use up that energy on days that I’m A. not feeling well and B. sticking around home anyway. I’ve limited the audience to a very select few who get to see me on my terrible days. It’s not how I want people to see me.

To get ready for a day out or for a visit takes an insane amount of energy. Any of you who deal with a chronic illness or pain totally feel me on this one. I can’t simply jump in and out of the shower and get ready quickly. My routine takes a long time as I really need to pace myself. Simply standing in the shower for more than 5 minutes winds me – forget the days I need to actually shave my legs! I’ve needed to put a chair in the bathroom to do my hair and makeup. I even get tired holding my arm up as I dry my hair. My outfits are carefully chosen, making sure I wear something that flatters me as my surgeries have left me with many lumps and bumps. I always need to rest whether that be just sitting down or sometimes even laying down, as this entire process exhausts me.

Some of you may say “well why waste so much energy?” I’ve come to discover, for myself anyway, that if I’m always in my pyjamas and not put together, I feel sicker. I do try to at least get dressed on days that I stay in, it doesn’t always happen, but even just putting jeans on helps to change my mindset from being ill to just really tired.

Going All Out For Projects vs How I Pay For It The Next Day

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I’ve always loved projects. I love learning new skills. And although I’ve had to put many on the wayside because of my energy levels, I still need to indulge in them from time to time for my own sanity, even though I know that it’ll cost me greatly in energy.

Just the other day, I decided to try my hand at making marinara sauce. I got the recipe from an Italian, so it’s got to be the real deal, right? The amount I made came out to about 35 litres which was way more than I anticipated, but we’ll be stocked for pasta and pizza sauce for a while now. It was a delicious success! Thing is, three days later and I’m still exhausted from it. I loved making it though, even if it means I’m out for the count for the next week. I love the aftermath of a finished project – is there anything better than seeing a task be completed?

I knew that this would tire me out, but it still surprises me when I get knocked out for so long from something that in the past a good night’s sleep would’ve cured.

Going Outside With My Daughter vs The Rest Of My Day With Her

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I like to share a lot of pictures of my days with my daughter. Although the plan was to go back to work once my maternity leave was up but plans changed when I was diagnosed with Ultra Short Bowel Syndrome. I am very much enjoying the extra time I’m getting to spend with her, but any of you who have spent any amount of time with a toddler knows that they never stop. Like ever. I wish I could do more with her. I wish we could spend more time outside and on the play structure. But after 20 minutes max of playing outside, I’m tapped out. I physically am unable to continue. The rest of the day is spent watching her play from the comfort of my couch.

I’ve tried play groups, but chasing after her for 2 hours is impossible. I’ve looked into swimming lessons, but I can’t go in public swimming pools as it could cause me to get an infection. We have most of our play dates here as I know the environment and I can more or less control it.

Thankfully our living room closes off from the rest of the house, so we spend our day in there. Me on the couch and my daughter playing with her toys. She is a very independent child and is perfectly content playing on her own. I really wish I could keep up with her, but it’s just not possible.

Events I Go To vs How I Prepare Leading Up To The Event

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I love sharing pictures of events I get to go to. It gives the illusion that I do have a life sometimes. What you don’t see however is how exhausting the smallest event can be for me. Each incapacitating me for at least a couple days afterward.

Being chronically ill has changed pretty well everything in my life, but I still do my best to make it to events such as concerts, weddings, trips, etc. I do however have to plan ahead for them differently than I would have previously. I went to a concert back in July and literally stayed in bed until supper time so that I would have the energy to stay at the concert as long as possible. At weddings. I unfortunately don’t have the energy to dance anymore, and I miss it, but I stay as long as I can and at least try to enjoy the dinner. And my trips so far are planned around leaving the hotel mid-morning, napping for 3 hours in the afternoon, and returning by 8pm for the night. None of these are ideal, but if it means I get to enjoy these moments, then it’s what I need to do.

My Family vs My Family

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I brag ALL THE TIME on Facebook about my family and it’s the same in reality. My husband is the most loving, caring and supportive man I could’ve ever asked for. Those pictures of my daughter always smiling, that’s pretty well how she always is. My family brings me so much joy and happiness. They keep me grounded and they give me hope for the future. There’s no point in showing it any differently on Facebook because they’re already pretty freakin’ great!

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